News

August 2021: A friend of Emilie’s has arranged that Albert Heijn Strijp (Eindhoven) calls to donate deposit receipts to Lichtgevend Foundation.

July 2021: Emilie had her 7th DSM in the AMC. This DSM didn’t have a result. A CT scan, made afterwards, showed a possible leak. In August Emilie speaks to her neurologist to hear what this means and what the options are!

June 2021: Emilie had a DSM in the AMC (Amsterdam University Hospital). Unfortunately it failed.

January 2021:
On January 13 the final amount of the sponsored bike ride, almost €25.000, was transferred to the Lichtgevend Foundation. With this amount the percentage of the total amount needed increased from 13 to 30%.

December 2020:
On December 20, 4 friends, including Aart, Emilie’s son, cycled from Groningen to America in 16.5 hours to collect money for Emilie. At 1 am they arrived in America.

Emilie, Willem, Aart, Floris, Huub
In America!

November 2020:
The Lichtgevend Foundation launches a video for Sinterklaas. It’s a video with a call to take care for each other:

October 2020:
October 15 an article about Emilie, her crochet projects and the crowdfunding is published in the Eindhovens Dagblad

15-10-2020 Eindhovens Dagblad

July 2020:
Cedars Sinai hospital reports the cost of the trajectory to close Emilie’s CSF Leak: $125.000,-

February 2020:
Emilie spoke to Dr. Schievink by phone. He sees opportunities to close the CSF leak. He is able to find (and operate) a CSF leak in 85% of the cases.